Since I have started this journey I have seen stories on group pages about people being abandoned as soon as they receive their diagnosis. I won’t lie, most of them make me cry. I can not imagine getting a diagnosis for Parkinson’s to then have the person who you share your life with walk away immediately after. It doesn’t have to be Parkinson’s but any life changing situation. To have that constant in your life suddenly vanish must make the future look so much harder, scary and so bloody lonely.
I took a moment to try and put myself in that position. How would I feel? Rejected. Unloved for sure. Suddenly no longer perfect, not that I am by a long shot. Maybe defective would be a better way to put it. An embarrassment? Probably a liability. Someone who will now hold you back from living the life you saw in your future. Well news flash. That is the new reality for the person who you have left behind.
Sadly being abandoned isn’t restricted to the nearest and dearest. Family and friends can also slink off quietly, hoping you don’t notice. It’s not so much boldly saying ‘sorry didn’t I sign up for this’ it is more stealth mode, under cover of darkness, vanishing. I’m sure a lot of that is due to them not knowing what you need, how to behave or even not wanting to be on the hook for extra assistance. Possibly not wanting to be witness to your deterioration.
They don’t want you treating them differently. They haven’t grown a second head. It’s not contagious. You probably won’t be asked to move in and help out. Sure they might need a lift on occasion but that’s not such a big ask. At this point they don’t know what they are dealing with. Trust me, I promise you will all be on the same page, except their learning curve needs to be a steep one. You don’t have to do the intense course, just a brief overview would be enough.

Never once has it crossed my to do this. To make my husband feel abandoned. Neither of us signed up for this curve ball. You just have to roll with it and make the most of the new reality. That new path might be rougher and a tad steeper but it doesn’t mean the view has to be bleak and miserable. Take it slow and enjoy the things you do encounter on the way, no matter how tiny.
Please don’t get me wrong, not everyone is cut out to be a carer as I covered in a prior post. I am not condoning staying in a relationship that is detrimental to your own health. However I do think there are ways to deal with it. This maybe easier in hindsight as I can bet that the urge to run at that moment of diagnosis could be overwhelming. Yet staying and making you both miserable isn’t going to help anyone in the long run.
So if this is you. Having been abandoned. Reach out, there are places and people that want to help. The future doesn’t need to be lonely or bleak. If you are the other side of the equation and want to leave but don’t want to leave someone abandoned, talk to some one. Perhaps you are scared. For both parties it is daunting. A lot is unknown and there is no set path. Each journey is unique. Just talk to each other. Be honest as it’s a lot to deal with. You’ll find the way that is best for you. I believe in you E x









